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Protandim® in the Battle against ALS
@OhioALSProject / ALS / ALS Cluster / Ashtabula County / Cluster / Conneaut / Lou Gehrig's Disease / MND / Motor Neuron Disease / neurotoxin / NOAP / Northern Ohio ALS Project / Ohio / Protandim / Rare Disease / Squeak Helfinstine / Toxic Dumping / toxic waste / Uncategorized / Vincina 'Squeak' Helfinstine / Vincina Helfinstine / Vincina Protocol / Vincina Protocol Project / Wendy Narad

Protandim® in the Battle against ALS

You hear a lot of talk in the Vincina Protocol and the Northern Ohio ALS Project- NOAP sites about the possible severe damage caused to our body by water run-off from toxic dump sites near our neighborhoods and waterways, not to mention all the things we do to our bodies we know isn’t good for us! Sadly, we believe Vincina “Squeak” Helfinstine, along with … Continue reading

Hit a Home Run Against ALS – New Tabletop Baseball Game!
@OhioALSProject / ALS / fundraiser / Medical Protocol / NOAP / Northern Ohio ALS Project / Squeak Helfinstine / Tabletop Baseball Game / Uncategorized / Vincina 'Squeak' Helfinstine / Vincina Protocol • / Vincina Protocol Project

Hit a Home Run Against ALS – New Tabletop Baseball Game!

In honor of Vincina “Squeak” Helfinstine,  and the legendary Lou Gehrig (our beloved Squeak  died of the same deadly disease; ALS as Lou Gehrig did), local entrepreneur Ryan Vehar has created our own sort of “Ice Bucket Challenge” with this amazing tabletop baseball game. It is Ryan’s way of helping the Vincina Protocol Project move forward in getting … Continue reading

ACTION ALERT! ALS patients face loss of Medicare coverage for devices used to help speech – Washington Post
#72HoursforALS / @OhioALSProject / ALS / amyotrophic lateral sclerosis / medicare / patient / patient advocacy / speech generating device

ACTION ALERT! ALS patients face loss of Medicare coverage for devices used to help speech – Washington Post

PLEASE WRITE OR CALL YOUR CONGRESSIONAL REPRESENTATIVES TODAY AND DEMAND THAT ALS PATIENTS RETAIN MEDICARE COVERAGE FOR THEIR CRITICAL SPEECH GENERATION DEVICES! By Shefali Luthra October 26 at 10:03 PM Starting Dec. 1, people with ALS — a disease that impairs motor function so people often can’t talk or even move — could lose access … Continue reading

NIH funds research consortia to study more than 200 rare diseases #RareDiseases #MND #ALS #VincinaProtocol
#72HoursforALS / @OhioALSProject / ALS / ALS Research / autism / Frontotemporal Lobar Degeneration / Lou Gehrig's Disease / MND / Motor Neuron Disease / natinal institutes for health / nih / Northern Ohio ALS Project / Rare Disease / Rare Diseases Clinical Research Network / RDCRN / Vincina Protocol

NIH funds research consortia to study more than 200 rare diseases #RareDiseases #MND #ALS #VincinaProtocol

$29 million awarded to expand NCATS’ collaborative Rare Diseases Clinical Research Network Physician scientists at 22 consortia will collaborate with representatives of 98 patient advocacy groups to advance clinical research and investigate new treatments for patients with rare diseases. The collaborations are made possible through awards by the National Institutes of Health — totaling about … Continue reading

Northern Ohio #ALS Project ‘Perch Fry’ Kickstarter Launch Party Airing on Conneaut Cable Access Channel
ALS / ALS awareness / ALS Cluster / Ashtabula County / Conneaut / Lou Gehrig's Disease / Mike Helfinstine / MND / Motor Neuron Disease / NOAP / Northern Ohio ALS Project / Ohio / toxic algae blooms / Toxic Dumping / Vincina Helfinstine / Vincina Protocol Project

Northern Ohio #ALS Project ‘Perch Fry’ Kickstarter Launch Party Airing on Conneaut Cable Access Channel

Today is the last day to catch the Ashtabula Current’s video coverage of the northern Ohio ALS Project’s ‘Perch Fry’ on Conneaut Community Access Channel 6. It will be re-played at 2.15 pm and 8.30 pm under the title: ALS Perch Fry . Thanks a billion to AC reporter Bill West for posting his video … Continue reading

Thanks for making #72HoursforALS a Success! #ALS #MND #RareDisease #TheVincinaProtocol
#72HoursforALS / @OhioALSProject / Algae Bloom / ALS / ALS awareness / ALS Cluster / ALS Journey / ALS Research / Ashtabula County / Blue-Green Algae / BMAA / Cheryl Dickson-Walker / Cluster / Conneaut / crowdfunding / Documentary / film / Media Magic / Michael Helfinstine / Mike Helfinstine / MND / Motor Neuron Disease / Northern Ohio ALS Project / Ohio / Rare Disease / toxic algae blooms / Toxic Dumping / toxic waste / tweetathon / Twitter / Vincina Helfinstine / Vincina Protocol / Vincina Protocol Project

Thanks for making #72HoursforALS a Success! #ALS #MND #RareDisease #TheVincinaProtocol

With toothpicks in our eyes, Mike Helfinstine and I completed our #72HoursforALS tweetathon at midnight, this morning. It was a blast.With both the @OhioALSProject and @Food_Mike handles going, we managed to triple our followers on Twitter. We used the time to promote our Kickstarter.com fundraising campaign for our documentary film, ‘The Vincina Protocol’, as well … Continue reading

@OhioALSProject #72HoursforALS Tweetathon enters third and final day!
#72HoursforALS / @OhioALSProject / ALS / ALS Cluster / ALS Documentary / ALS Journey / film / fundraiser / fundraising / Kickstarter / MND / Motor Neuron Disease / movie / Northern Ohio ALS Project / Rare Disease / Trailer / Twitter / Vincina Helfinstine / Vincina Protocol / Vincina Protocol Project

@OhioALSProject #72HoursforALS Tweetathon enters third and final day!

Welcome to Day three of #72HoursforALS Twitterthon. Mike is entering his 48th hour of tweeting about the Northern Ohio ALS Project – Creating The Vincina Protocol and promoting our Kickstarter.com campaign to fund our documentary film on Vincina’s ALS journey, ‘The Vincina Protocol’. Chat with us on Twitter until midnight at @Food_Mike and @OhioALSProject and … Continue reading

BREAKING NEWS! Our State Rep. John Patterson  co-sponsors bill to Monitor Harmful Toxins in Ohio’s Drinking Water
Algae Bloom / ALS / ALS Documentary / Ashtabula County / Blue-Green Algae / BMAA / Conneaut / House of Representatives / John Patterson / Legislation / Mike Helfinstine / Ohio / Ohio House / State Government / Vincina Helfinstine / Vincina Protocol

BREAKING NEWS! Our State Rep. John Patterson co-sponsors bill to Monitor Harmful Toxins in Ohio’s Drinking Water

We are so proud! This legislation follows the Northern Ohio ALS Project’s meeting with Rep. Patterson July 7th, in which we presented him data on the dangers of toxic algae blooms and BMAA neurotoxins, linked to ALS / Lou Gehrig’s Disease and other Motor Neuron Diseases and the need for adequate testing of public water … Continue reading

CONNEAUT MAN TO STAY UP FOR #72HOURSforALS TWEETATHON FOR ALS DOCUMENTARY FILM’s KICKSTARTER FUNDRAISING CAMPAIGN
ALS / ALS awareness / ALS Cluster / ALS Documentary / campaign / Conneaut / crowdfunding / Documentary / film / Filmmaking / fundraiser / fundraising

CONNEAUT MAN TO STAY UP FOR #72HOURSforALS TWEETATHON FOR ALS DOCUMENTARY FILM’s KICKSTARTER FUNDRAISING CAMPAIGN

Northern Ohio ALS Project seeking local backers to become ‘hollywood producers’ of movie for PBS  CONNEAUT, OH.  Michael Helfinstine will not be getting much sleep this weekend. Starting Friday, September 19, at midnight, the former Conneaut restaurant owner and executive director of The Northern Ohio ALS Project, will be tweeting on the social media platform, … Continue reading